July is Disability Pride Month.
I don't spend much time on this blog because I've moved on from those dark days of pain, despair, and hopelessness that limited my abilities, stole parts of my life, and denied my dreams for years. Disability is a place I no longer want to visit, although it defines my life and makes me who I am. Each day I move forward and make the most of what I can do. Since it's been a while since I last posted to this blog, I'd like to share a little bit about what I've been up to and how I manage to do it. My message: Never give up. Even a little bit can be a lot. This blog post originally appeared on The Balanced Writer.
Respect Your Limitations ~ Live Your Dreams
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| photo by Edward Samuel via Dollar Photo Club |
Ask
any writer and she’ll tell you it’s difficult to manage writing projects while
balancing life’s more immediate responsibilities: parenting, marriage, family, friends,
a job. When I started this writing
life my biggest issue was finding time to write. I worked as a nurse, had a
young child, a husband, a home, all of the above. I wrote when the opportunity
arose, often after everyone else went to sleep. It was slow going, but I didn’t
care. I knew I’d finish the book someday.
Then
something happened that I never expected, and it left me unable to write for years. An inappropriate computer
work station at my job left me with thoracic outlet syndrome, carpal tunnel
syndrome, bursitis, tendinitis, headaches, and chronic musculoskeletal and
nerve pain. All of this led to three surgeries and years of physical and
occupational therapy. Yet despite all of the medical care, my chronic pain
issues continue to require some level of management every day.
Needless
to say, this makes it difficult for me to achieve my goals as a writer, but
with these injuries came something I had longed for: plenty of time to write,
because the job became history and my new occupation was to get well. What
irony. Yet I am unwilling to allow my disabilities to stop me from pursuing my goals,
and proceed at my own pace, heeding the words of my very wise doctor: “Respect
your limitations.” This requires a delicate balancing act. I often feel like I
walk a tightrope, one day in perfect harmony with the rope and the next day
teetering on its edge.
Writing
with this type of disability involves a variety of tools, devices, and
strategies. For example, I rotate my writing between a PC, laptop, and iPhone. Sometimes
I skip the keyboard and use pen and paper. I also use Dragon Dictation, an
excellent tool.
I
manage almost all of my social media via my iPhone. It is indispensable, allows
me to take advantage of small chunks of time, and helps me accomplish more than
I ever would if I relied solely on a PC or laptop. I’ve used it to write
sections of my books, emails and letters, my never-ending to-do lists, and endless
research. Automated programs like Hoot Suite and Tweetdeck are also useful in
coordinating my posts and tweets.
Daily
physical care of my injuries (which flare easily and frequently) involves
topical and oral pain relievers, heat and/or ice, and hand splints. Periods of
rest and avoidance of keyboarding are mandatory. Aquasize classes twice a week
help keep me flexible. Massage therapy and chiropractic are often used
modalities.
When
on a healing break from writing I read, studying the writing process and
learning more about publishing and marketing. I also indulge in novels in a
variety of genres.
Five
years ago I was able to return to work two days a week. I don’t write on work
days and I don’t beat myself up if I’m unable to write for several days after a
work day because of a flare-up (my job, unfortunately, requires computer use.)
These
are just some of the ways I manage to balance my physical disabilities and my
writing life.
A
common “rule” for writers is to write
everyday. This isn’t possible for me, and so I don’t. Some might say I’m
not a writer because I don’t work every day. I disagree. I work when I’m able
to – physically - and when that’s not possible I do what I must in order to
recover from any overuse so I can scratch out another page or two and slowly
work my way to The End.
My
advice to anyone who uses a keyboard for any significant length of time is to
always be aware of your posture; sit up, don’t slump. Take frequent rest
breaks. Listen to your body. If you feel any pain, stop and take a moment to
stretch. Muscles, ligaments and nerves can easily become injured from overuse
and need tender loving care. These injuries can take years to heal, and some
may not heal at all. Often, surgery is required, and is no guarantee of freedom
from pain and return to full function. For more information read
this.
My
story has a happy ending: I’ve learned to manage my disability to the point
where I am able to pursue writing at my own very slow, but slowly productive,
pace. In April of 2013, I succeeded at publishing my debut novel, Blue Hydrangeas, an Alzheimer’s love story, in paperback, ebook, and
audiobook. I’m working on a second novel, Swim Season. I have this blog, a Facebook page, Twitter, and Pinterest presence. I teach
classes on how to publish your own book. My writing dream is alive!
